(This is may girls, niece, husband &
myself letting go of a balloon for Silas which we all wrote our prayers on.)
I thought that having the memorial would make me feel better, but
honestly I found out the hard way that actually it created more pain than ever
before!!! Once that went buy (lasted for about 3-4 days) I started to heal and
feel like things were getting back to normal life as possible (whatever normal
is..)
I have since finished filling out the research study programs for CDH
and need to mail them in this week. My husband had since been laid off since
beginning of Nov. So, we have both been actively looking for work and I
today have locked down a position with a small company that will give decent
pay when it goes FT & a flexible schedule. Eli is still looking for
work and hopes to get enrolled in to trucking school so that he can get great
benefits & see the south east region so we can find out exactly where we
will buy a house in the future,
Florida doesn't have much left here. My oldest will be 18
in a couple of years and will go to college (hopefully UF to be a Vet) &
the school system here sucks! I miss the change in the land (valleys &
mountains). Don't know that isn't for a few years like 3-4. Until
then he just need dependable work. I still haven't had a chance to
write all my thank you's but I will, in due time.
Today: Applied for a job & got a trial period for a few days as
a secretary. So, I have to knock them dead when I get there and show them
what I got! I'm excited yet nervous as it has been since June
I haven't worked. If all goes well it'll become FT in a few weeks
with decent pay & I can work from home once I learn exactly what they
want me to do. On another note not to long after that I got a call from the
genetics counselor and he has received a copy of Silas' autopsy
report. We have an appointment for this Wed. 8 a.m. I did get a chance to pic
his brain for a second. I asked him if the findings of the report has found
VATERS/VACTERL's. He told me no, so I asked him if it was FRYNS like he thought
to begin with. Then he said to me that the findings do NOT show ANY conclusive
findings, but that from what the report says they are leaning towards FRYNS
& we need to test further. So, till Wed. I'm stuck on chuck!.. lol
Other than that the only other thing is that I
have decided that I want to open a charity to
help families of Cherubs that pass with providing basic household,
hygiene & groceries for one month. One delivery for the family each week
for 4 weeks. I need to find extreme couponers to help. I wanted to
name it Silas' Supper or Supper from Silas, but now I like Feed the Cherubs not
sure anyone have any suggestions.
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